Could you wait 10 years? Would you?

For parents of children with special needs life is defined by next steps or transitions; our children transition from home to elementary school and then to middle school then to high school and then what . . .

When our children reach the magical age of 18 or the coveted adulthood life becomes  . . . forever after and another maze begins, and that maze is called ‘the wait list’. Imagine yourself walking into your favorite coffee shop (or you pick a place) tomorrow morning, putting in your order and being told “please have a seat, your order will be ready in 10 years”. Let that sink in for just a moment but take your time, the wait no matter your indignance is TEN years.

Organizations offering services are overworked and fight for every dollar they can get, both from the government and donor giving. Staff often work harder and for less money than can be made by being unemployed. Most if not all that work as ‘caregivers’ or service providers do what they do not for the money and fame but for the love of their neighbor.

Entitlement is and continues to be a trap, those that live with a disability face uncertainty if not for the love and dedication of parents and caregivers like myself. My children are not entitled to anything other than the same life as every able bodied person in our country and they shouldn’t have to wait or live a life in the margin to get what people like myself work so hard to give them.

I may not see the end of ‘the wait list’ in my lifetime, but if I leave this earth before my sons, they will not, they will not be left waiting. I refuse to shout at government or be the squeaky wheel, I simply will find, make, build, create or otherwise devise a way around the problem.

Those with a like mind are encouraged to join me, alone I am but one but together we can. What are you waiting for? My email is

Be well and be blessed.


About kellykrei

Husband to Michele Martinson Krei for 34 years and father of 23 year old twin boys, Kyle & Hunter, both endowed with Down syndrome and Autism Spectrum Disorder.
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