My reponse to an article written by a fellow parent on the number of people in the US that have Down syndrome(DS). In my lifetime, I would like to find a way to understand DS and learn from it; and I hope to give my sons a better life, while I’m here on earth and long after I have left it should I leave before they do. Thanks for reading and for caring . . .
I hope you don’t mind if I call you Mark; the number of people living in the US ‘endowed’ with Down syndrome is inconsequential, and the fact that the number is tracked by the Centers for Disease Control makes it more so.
• There are children born every year that are ‘endowed’ with Down syndrome (DS).
• There are children that die every year whether or not they are born with or without DS.
• The number of children aborted due to the possibility of being born with DS is a question that only the parents of these children can answer, and one that they will only answer when they face their creator, and not recorded by the way.
• Your numbers make sense, but what question are you attempting to answer?
• How many children are aborted that have been misdiagnosed?
• My wife and I are ‘pro-choice’ and given that we did not know prior to their birth, we are forever grateful that we never had to face the choice, to live or not because life without Kyle and Hunter would be a life less lived.
• What about the number of children born with co-occurring DS and Autism? And if given a choice based on a test how many children are out there that have simply been “labeled” DS or multiple disability.
• How many children are unknown to the Centers for Disease Control because the parents refused to have their child listed as a disease?
John Langdon Down simply described the condition and through the years many have attempted to eliminate it or ignore it . . . But these children, no matter the number exist and they exist for a reason.
As parents of children ‘endowed’ with DS, we look not for any way to take away the condition . . . but to better understand ‘it’ and learn from ‘them’.
Albert Einstein put it best “Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid.”